Mental Health Booklet
Living with a rare disease is difficult enough, not knowing what each day will bring or what the future holds.
Ben Parker a member of the Pompe Support Team created, with the help of a mental health nurse, a booklet that looks at supporting the mental health of people living with Pompe. The booklet is also relevant to any muscular dystrophy. It is available as a free download by clicking the link below.
Pompe Disease 