Welcome to understanding Late Onset Pompe Disease
Pompe Wales is an independent website dedicated to educating and informing people about Late Onset Pompe Disease (LOPD).
There are several glycogen storage diseases (GSDs), with Late Onset Pompe Disease (LOPD) being one of them. It is classified as GSD 2 and is the only GSD that is also lysosomal.
Each person with LOPD is unique, so symptoms can vary from person to person. While we all experience similar symptoms, everyone’s journey with LOPD is different.
In the upcoming pages, I will try to cover everything you need to know about LOPD. This includes its causes and effects. I will also discuss lifestyle choices like diet and exercise. Additionally, I will outline the specialist teams that support those of us with Pompe and various treatment options available.
Pompe Disease 